In Part 1 of this series, we commented on our surprise at learning that 12 of 16 important stroke rehab criteria are not reported in the US. We then took the results that could be found and shared them with doctors and therapists involved in stroke rehab. The light for us went on when an occupational therapist made this telling comment: “If people in the US knew these kinds of results were possible, no one would put up with [these results].”
We spoke with Dr. Lee Schwamm, Professor of Neurology at Harvard Medical School and Vice-chairman of Neurology at Massachusetts General Hospital. Dr. Schwamm also chairs the American Stroke Association’s Get with the Guidelines committee looking at stroke care. ”Millions of dollars are being spent on acute care, but almost nothing is being focused on the costs of long-term rehab,” he commented. “It’s a part of the story that’s not being told.” We spoke with an insurance executive who described stroke rehab as being one of many “futile cases.” A futile case, he shared, is one that is too expensive for the results being achieved.
The result is that the expectation for recovery is lowered from an active life to an adaptive lifestyle. Here’s how one insurance company defines it: “Do as well as you can and be as independent as possible. Learn to live with the changes to your brain and body caused by the stroke. Adjust to living within your home, family, and community.” Another insurer defines the end for benefits as reaching the ability to “with limited assistance, perform the minimal activities of daily living.”
However, stroke survivors and their families almost unanimously define recovery differently. They understand the difficulty. They understand that rehabilitation cannot cure the damaged parts of the brain. However, they also know the wonder of the brain’s ability to reroute some functions and recover areas that are not permanently damaged. They recognize recovery as regain as much independence as possible, not some minimum level. They understand that 95% is pretty good, if 100% isn’t possible. They are prepared to work toward recovery.
When they see what is possible, they too express feelings much like the OT above. They are pleasantly surprised to learn how accessible it is. What they don’t understand is the opposition they experience in trying to get there.
In Part 3 of this series, we’ll look at some of the statements made by well-meaning family, doctors, therapists and others, and why those statements are more myth than reality.
For more information about what you can do to help someone you know, contact us at www.chinaconnection.cc.
Filed under: destination healthcare, Medical care | Tagged: affordable healthcare, affordable medical care, china connection global healthcare, destination healthcare, global health, patient care, stroke, stroke recovery, www.chinaconnection.cc | Comments Off







the story of stroke survivor Devin Dearth and what for many is a somewhat unconventional road to recovery. The film premiered two weeks ago at the Louisville International Film Festival, where it was runner up in the prestigious Audience Award category. It premiered last week in Los Angeles and appears Sunday, October 17 at The Other Venice Film Festival in Venice, CA. You can view the trailer through its Facebook fan page at:
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